Some great organizations who are making a difference in the lives of people with clubfoot.
There are about 1 million children living with untreated clubfoot in developing countries. Many of these children will not walk properly. They will not be able to run, play or go to school. It doesn't have to be this way. Using the Ponseti method, clubfoot treatment is simple, highly effective - and inexpensive!
For $250 per child, miraclefeet brings the magic of treatment to developing countries. Every day, children across the world are born with clubfoot. Help us give them the chance to walk.
The Ponseti International Association is the global leader in training and educating healthcare providers on the treatment for congenital clubfoot. The Ponseti Method was developed at the University of Iowa by Dr. Ignacio Ponseti, M.D. This method for clubfoot treatment is nearly 100% effective when used properly by a trained health care provider and is considered the "gold standard" treatment for clubfoot. Health care workers in underprivileged areas of the world with limited access to surgical facilities can be trained to use the method, helping hundreds of thousands of children walk...around the world.
If only it was 100% effective. The numbers are around 80% for excellent to good enough. And the rate of regression is a lot higher than 0%. While I support the Ponseti technique wholeheartedly, it is, I believe, a disservice to adults with clubfoot to spread the false information that this is a one time fix. After childhood clubfoot drops off the radar. In a facebook group of thousands and adults with CF we have been unable to find ANY organization or govt program for researching or treating or helping adults with CF. I believe it largely has to do with the misinformation that the Ponseti method solves all CF problems. If only that were so!
ReplyDeleteIs there an active forum anywhere for adults dealing with the pain from clubfoot surgery as a child? Everything seems old and not active.
ReplyDeleteEverything is focused on the child but no resources found on adulthood pain related to clubfoot. Please help.
ReplyDeleteI agree not much for adults but the only she that works for me are hoka bondi they last 3 months
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